- You have great expertise. That's why I came to you. But that doesn't give you the right to get angry with me if I choose a different path or a different doctor for a portion of my care... it had nothing to do with you!
- When you ramble in condescending tones and look down your nose at me, it is highly disrespectful.
- Speaking poorly of the nurses and other doctors at your own hospital -- and your peers elsewhere -- is entirely unprofessional.
- Inserting your unsolicited opinion in an area beyond your specialty and making me doubt my care -- the plan of the doctor YOU referred me to -- is reckless.
- If I know the facts of my pathology and staging better than you, you lose my trust.
- Lastly, when you tell me I'll never be able accomplish a goal, you ignite a fire within me. You don't know me, my history, my strength, or my God. Please note: I was also told I would never get into an ivy league school, move to Georgia, or obtain special education services for my son. I have my RPI master's degree. I've lived in Georgia for 16 years. My son has exactly the services I fought for -- some of which took 3 years to "win." My God gives me supernatural strength to endure life's hardships -- including the load of crap you heaped on me yesterday. I'm not a failure in the making or a quitter... except in this case, because I am quitting YOU.
Tips for Learning to Be an Advocate
- Do extensive research so you can speak intelligently on the topic.
- Pray about your decisions and before big meetings.
- Keep your cool. Never resort to anger or ugliness.
- Bring a tough looking supporter. (Tony always made a great "be afraid of me" face so I could be the polite spokesperson.)
- Document everything. Sometimes you may even need to record an interaction with full disclosure of course.
- Know when to raise the stakes, move to arbitration, or move on.
- Never, ever, ever give up if God has made it clear you are working according to His perfect plan.
"But in all these things we overwhelmingly conquer through Him who loved us." - Romans 8:37
To help fund my chemotherapy and multiple surgeries, you can make a donation at: http://www.youcaring.com/medical-fundraiser/join-forces-in-emily-gregory-s-battle-with-cancer/344536 -- THANK YOU IN ADVANCE for your generosity. Even $10 makes a big difference.